Our beautiful daughter Jessica was born in September 2011 with a severe heart defect called hypoplastic left heart syndrome. This was diagnosed at her 20 week scan and we were initially told that she was unlikely to be suitable for surgery. However, a pioneering in-utero operation at 28 weeks to enlarge a hole in her atrial septum was carried out and she was able to make it to term and get through her first open-heart surgery at just eight hours old. Jessica underwent five more surgeries during her life. Her final surgery - the Fontan procedure - took place in December 2017. She initially made a good recovery but sadly passed away suddenly on 14th April 2018 at the age of 6. This is the story of a little girl whose half a heart overflowed with love. She was, and will forever be, our little miracle and brought joy to all who knew her.

Sunday, 15 April 2012

A stable day

Jessica had another stable night although the nurses reported that she hadn’t really wanted to sleep very much and so consequently we had an overtired and very grumpy Jessica throughout most of the day! Despite her grumpiness, she was starting to be a little more like her usual self and was more interested in her toys, playing with her dummy and with the lights that the nurses put around her cot to amuse her.

Her oxygen saturation levels have remained on the low side throughout the day and she is still breathing fairly rapidly but as things have been stable, the team decided just to observe for today and to do another chest X-ray tomorrow (particularly as she has had quite a lot of chest X-rays in the last couple of days). Her lungs both sound like there is good air entry and so the extra work with breathing may just be due to the paraflu virus.

We had some more time with her out of the cot for cuddles this afternoon which has been lovely and Grandma and Grandad came to visit in the evening and had a little bit of time with Jessica before she settled down to sleep. As she had been so awake and overtired, she was given a sedative to help her get a good night’s sleep tonight.

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