A much happier little Jessica

The last couple of days have been quite stable.  Jessica is continuing to do well and is back to her usual happy self which is wonderful.  We have had lots of babbling and cooing as well as some lovely big smiles over the weekend.  All her observations have been stable and the amount of oramorph she is having is gradually being reduced.  She is occasionally taking small amounts of Monogen by bottle but most of it goes down her feeding tube now and we have resigned ourselves to the fact that she is likely to go home with a nasogastric tube in situ again although will keep trying to encourage her to drink it from the bottle!

 Last time she had an NG tube, the biggest problem we had was with reflux and vomiting and needing to give smaller feeds more frequently.  So far though, Jessica is managing to tolerate 4-hourly feeds down the tube and has kept them down so tube feeding this time around will hopefully be a little less stressful.  

It has been a quiet weekend on the visitor front with just godmummy Katy coming to visit, but it has been lovely to spend time together as a family (as Michael has been back home and working during the week).