Tomorrow morning, Jessica will be starting back at preschool
again, and will be going for three mornings a week. We have enjoyed the last few weeks of the
summer holidays – spending a few days staying with Auntie Fizz and cousins
Ebony and Erin, blackberry picking in Grandma’s garden, picnics in the garden,
treading grapes to help Grandma make wine and having fun doing crafts at home
during the rainy days. We have been
focusing on potty training over the last few weeks and have been so proud of
how well Jessica has done with this.
Jessica has enjoyed being able to go back to her “favourite
Legoland ever!” now that our preschool passes are valid again. It is so lovely to watch her and Sophie
wandering about hand in hand as they explore the park and to see how close they
are. Bedtime is particularly beautiful
as Jessica always has to give Sophie a big cuddle and kiss and say “I love you
Sophie” before she goes to sleep. Sophie’s
response of “luz you Jess-sha” is adorable too!
We had a visit from the community nurse last week and
Jessica’s sats were back up to 83% which is really good. The results of the chest X-ray have come back
and all was fine with that so last month’s dip was hopefully just a little
blip. We are still waiting to hear when
Jessica’s next cardiac check-up will be as this month’s appointment was
cancelled.
It is amazing to see how well Jessica is doing and to see
how far she has come. This past year has
been the first one without any hospital admissions and it has been amazing to
just enjoy a normal, happy family life.
A huge thank you to everyone who supports us on this journey – the wonderful
team on Ocean Ward and PICU whose skills got Jessica through all her surgeries
and the recovery period afterwards, and all our friends and family whose love,
support and prayers have helped get us this far. We feel incredibly blessed to be here today,
watching Jessica celebrate her 4th birthday and enjoying every minute of it.
