Our beautiful daughter Jessica was born in September 2011 with a severe heart defect called hypoplastic left heart syndrome. This was diagnosed at her 20 week scan and we were initially told that she was unlikely to be suitable for surgery. However, a pioneering in-utero operation at 28 weeks to enlarge a hole in her atrial septum was carried out and she was able to make it to term and get through her first open-heart surgery at just eight hours old. Jessica underwent five more surgeries during her life. Her final surgery - the Fontan procedure - took place in December 2017. She initially made a good recovery but sadly passed away suddenly on 14th April 2018 at the age of 6. This is the story of a little girl whose half a heart overflowed with love. She was, and will forever be, our little miracle and brought joy to all who knew her.

Tuesday 24 April 2012

Morphine withdrawal


Jessica had another chest X-ray in the morning as the bottom lobe of her left lung sounded quieter when the doctors did their check this morning.  The chest X-ray showed that there is a small amount of fluid around the left lung and so she also had an echocardiogram and ultrasound to look more closely so the team could decide whether any further action was needed.  At present, the amount of fluid seems quite small and so the plan is to observe and repeat the chest X-ray in a few days (or sooner if Jessica has any difficulties with breathing).

 
The morphine infusion has now been stopped and Jessica is now on oramorph.  She has been showing signs of withdrawal today – mostly irritability and sweatiness which has made her quite unhappy although thankfully so far she seems to be suffering less from withdrawal than she has done previously.  There are moments when she is awake and fairly settled and she is definitely soothed by mummy or daddy’s presence during the more unsettled moments.  The amount of morphine she is having will gradually be reduced to help minimise the side effects from withdrawal.


Her wound was also redressed today and looks much better than it did last week which is encouraging.  We were also able to dress Jessica in a babygro for the first time in over a week and Louise managed to have a very brief cuddle.

5 comments:

  1. I have been reading Jessica's progress from when you first started to write her life on here. I am so pleased that things are looking up. Love to you all xx xx Keep strong Jessica x x x

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  2. This sounds like good progress. I think we'd share Jessica's irritation at all of the intrusions...but one day, she'll be grateful for it. Love to you all.
    Elizabeth.

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  3. Thank you both - we have had a very good day today - it is so nice to be making good progress now! x

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  4. Dont know if babies can take ant diahrreal immodium ad but it contains an opiod loperamide hcl which completely eliminates agonizing morphine withdrawal symptoms. God bless.

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  5. Dont know if babies can take ant diahrreal immodium ad but it contains an opiod loperamide hcl which completely eliminates agonizing morphine withdrawal symptoms. God bless.

    ReplyDelete