Our beautiful daughter Jessica was born in September 2011 with a severe heart defect called hypoplastic left heart syndrome. This was diagnosed at her 20 week scan and we were initially told that she was unlikely to be suitable for surgery. However, a pioneering in-utero operation at 28 weeks to enlarge a hole in her atrial septum was carried out and she was able to make it to term and get through her first open-heart surgery at just eight hours old. Jessica underwent five more surgeries during her life. Her final surgery - the Fontan procedure - took place in December 2017. She initially made a good recovery but sadly passed away suddenly on 14th April 2018 at the age of 6. This is the story of a little girl whose half a heart overflowed with love. She was, and will forever be, our little miracle and brought joy to all who knew her.

Wednesday 22 January 2014

Home again

We’re now all back home again after being discharged from Ocean Ward earlier today.  Jessica had a reasonably good night and by morning was getting back to her usual self, although was still a little bit on the subdued side.  She didn’t enjoy having her dressings removed but being able to ride the cars up and down the ward again soon helped to cheer her up again whilst we were waiting for the discharge paperwork so we could head home.



Thank you to everyone for all your support and thoughts and prayers over the last few days.  It feels good to be back home again!


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