Our beautiful daughter Jessica was born in September 2011 with a severe heart defect called hypoplastic left heart syndrome. This was diagnosed at her 20 week scan and we were initially told that she was unlikely to be suitable for surgery. However, a pioneering in-utero operation at 28 weeks to enlarge a hole in her atrial septum was carried out and she was able to make it to term and get through her first open-heart surgery at just eight hours old. Jessica underwent five more surgeries during her life. Her final surgery - the Fontan procedure - took place in December 2017. She initially made a good recovery but sadly passed away suddenly on 14th April 2018 at the age of 6. This is the story of a little girl whose half a heart overflowed with love. She was, and will forever be, our little miracle and brought joy to all who knew her.

Monday, 3 February 2014

Teething and talking

Jessica has been quite subdued though over the last couple of days and we think this is probably due to the second set of molars making their way through as she wants to chew on her clothes and toys and has been more unsettled at night than she usually is.  Two of the molars have already made their way through in the last couple of weeks so just two more to go and then Jessica should be done with teething for the foreseeable future (hopefully we’ll have  a few more weeks before Sophie starts the teething process though!)


Teething aside though, she has recovered well from her cardiac catheter and we have had a letter from Dr Archer to let us know that the team have discussed the results which are “very satisfactory” and have agreed that “continued observation is all that is required with a very good chance that we will not need to talk about further cardiac surgery during the course of 2014” – good news!  Our next planned hospital check-up is not until the beginning of April (with the paediatrician at Wexham Park) and hopefully we can stay out of hospital until then!



Jessica’s speech has really been coming along over the last few weeks and she is putting a lot more words together to make phrases (I particularly like Jessica telling me I’m her ‘favourite mummy!’) and is also doing a lot more signing (picking up new signs from Tiny Talk and Something Special).  She made us laugh at bedtime when Daddy mentioned Mr Tumble and was promptly told.  “No Tumble.  Sleep.  Silly Daddy!”  We tried to teach her to say “Auntie Twinny” and were confused when she kept repeating “Auntie Fizz” until we realised that she thought we were saying “Auntie Tweenies” (Fizz being her favourite Tweenies character!)  She also now says “Sophie” rather than “Sofa” (although Sophie is often just referred to as “baby”) and is very good at sharing her toys with her little sister (although Sophie isn’t always so keen at having things shoved in her direction!) and making her smile.

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