We met our new consultant Dr Szespesvary at this morning’s cardiac check-up. As far as we know, there doesn’t seem to be much change with Jessica’s heart function from her echo (although it is not so easy to tell given that the appointment was with a new consultant!) We have noticed over the last few months that Jessica is telling us more that she is “running out of breath” when we are out and about but we’re not quite sure whether she is actually tiring more or just better able to articulate it – she certainly seems to have plenty of energy most of the time. Her sats measured at 74 today but it was difficult to get a good reading and I am not completely convinced that this was an accurate measurement – her colour certainly seemed much better than I would expect if it was.
The plan at the moment is that Dr Szepesvary will meet with the team in Southampton and discuss the plan for moving forward with the next stage. As we already know, she will need to have a cardiac catheter to help provide more information about her current cardiac function and it may well be that that team decide that this will take place before our next planned appointment at Oxford, which is in four months’ time. Dr Szepesvary also mentioned the possibility that the Fontan may take place before Jessica starts school in September.
The mention of the Fontan possibly taking place in the next six months has left us feeling quite anxious and has brought the reality of it all back home again. As Michael has reminded me though, the team has not yet decided that this will be the case – the only things we know for sure at the moment are that the team will be discussing Jessica in a couple of weeks’ time and that we have a cardiac check-up booked for July. Other than that, we won’t know any more until the team meeting.
We’ll keep you updated on this when we know more.
