Our beautiful daughter Jessica was born in September 2011 with a severe heart defect called hypoplastic left heart syndrome. This was diagnosed at her 20 week scan and we were initially told that she was unlikely to be suitable for surgery. However, a pioneering in-utero operation at 28 weeks to enlarge a hole in her atrial septum was carried out and she was able to make it to term and get through her first open-heart surgery at just eight hours old. Jessica underwent five more surgeries during her life. Her final surgery - the Fontan procedure - took place in December 2017. She initially made a good recovery but sadly passed away suddenly on 14th April 2018 at the age of 6. This is the story of a little girl whose half a heart overflowed with love. She was, and will forever be, our little miracle and brought joy to all who knew her.

Sunday, 5 January 2014

Happy New Year


 


Happy New Year to you all!  Jessica managed to see in her first New Year at home (albeit asleep in her cot) after having been in hospital for the last couple of years.  We have had a lovely Christmas as a family of four, spending Christmas Day with Grandma and Grandad and then going to visit Nanny and other family members between Christmas and New Year.  Jessica has had a lovely time playing with her cousins.  She thoroughly enjoyed opening all her presents (as well as most of Sophie’s!) at Christmas although was a little young still to understand much about Christmas and her first reaction to her Christmas stocking was to burst into tears and hand in back to Mummy (although once she had  woken up a little more she became more interested in the contents!)



We are still awaiting a date for Jessica’s cardiac catheter procedure but will let you know once we have a date for this.




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