Our beautiful daughter Jessica was born in September 2011 with a severe heart defect called hypoplastic left heart syndrome. This was diagnosed at her 20 week scan and we were initially told that she was unlikely to be suitable for surgery. However, a pioneering in-utero operation at 28 weeks to enlarge a hole in her atrial septum was carried out and she was able to make it to term and get through her first open-heart surgery at just eight hours old. Jessica underwent five more surgeries during her life. Her final surgery - the Fontan procedure - took place in December 2017. She initially made a good recovery but sadly passed away suddenly on 14th April 2018 at the age of 6. This is the story of a little girl whose half a heart overflowed with love. She was, and will forever be, our little miracle and brought joy to all who knew her.

Wednesday, 8 January 2014

Cardiac catheter date



We now have a date for Jessica’s cardiac catheter  investigation – this has been arranged for 21st January so we will be going back into Ocean Ward on 20th January to prepare for this.  It has been well over a year since Jessica’s last cardiac catheter and now we have a date, we are feeling a little anxious about going back into hospital for this, particularly as Jessica is older and more aware of what is happening and probably will not remember having been on the ward previously.  This time also, we will be juggling the needs of two children which will probably mean that Daddy will have to stay on the ward with Jessica instead of Mummy (something I think will be more of a struggle for Mummy than Jessica to be honest!)  Hopefully all will go well and the results will be encouraging – we will keep you updated.


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1 comment:

  1. Unknown8 January 2014 at 20:28

    We will be thinking of you all. If there's anything practical we can do, you just have to let us know. x

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