Our beautiful daughter Jessica was born in September 2011 with a severe heart defect called hypoplastic left heart syndrome. This was diagnosed at her 20 week scan and we were initially told that she was unlikely to be suitable for surgery. However, a pioneering in-utero operation at 28 weeks to enlarge a hole in her atrial septum was carried out and she was able to make it to term and get through her first open-heart surgery at just eight hours old. Jessica underwent five more surgeries during her life. Her final surgery - the Fontan procedure - took place in December 2017. She initially made a good recovery but sadly passed away suddenly on 14th April 2018 at the age of 6. This is the story of a little girl whose half a heart overflowed with love. She was, and will forever be, our little miracle and brought joy to all who knew her.

Wednesday, 8 November 2017

Waiting for a new date

We should have been heading in to Southampton today. However, we have had a call this morning to let us know that Jessica’s surgery has had to be cancelled. Both Ocean Ward and PICU are very busy at the moment.


Jessica and Sophie sitting on a bench under a painting of a rainbow



We’ve been here before. Thankfully this time we are not on the ward ready to go to theatre having been nil by mouth for several hours though! Jessica is disappointed that she will have to wait a little longer for her sleepover but it can’t be helped. I have been reminding myself that God’s timing is perfect. This is not the right time for Jessica’s surgery. It will happen at the right time for her. We’re okay with this decision.



I’m hoping that we will hear back tomorrow with a new date. It could be that we have to wait a couple more weeks.


For now though, it’s back to school, back to normality and back to enjoying all the little moments. We’re a little in limbo once again but we’ll be ready for the new date when it comes.


Jessica on a rocking black swan at the playground




Thank you everyone for all your love, support and prayers so far. We will update again when we know more.
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