Our beautiful daughter Jessica was born in September 2011 with a severe heart defect called hypoplastic left heart syndrome. This was diagnosed at her 20 week scan and we were initially told that she was unlikely to be suitable for surgery. However, a pioneering in-utero operation at 28 weeks to enlarge a hole in her atrial septum was carried out and she was able to make it to term and get through her first open-heart surgery at just eight hours old. Jessica underwent five more surgeries during her life. Her final surgery - the Fontan procedure - took place in December 2017. She initially made a good recovery but sadly passed away suddenly on 14th April 2018 at the age of 6. This is the story of a little girl whose half a heart overflowed with love. She was, and will forever be, our little miracle and brought joy to all who knew her.

Tuesday, 17 October 2017

We have a date

We received a call from Southampton earlier today and now have a date for Jessica’s Fontan procedure.  Jessica will be going in to hospital on Wednesday 8th November and will have her surgery on Thursday 9th November. She knows that we now have a date for her “sleepover at the doctors” and is quite excited about it, bless her. Mummy and Daddy are rather less excited but it helps that Jessica is taking it in her stride!


We have arranged that Sophie will be staying with Auntie Fizz for a while and hopefully she will enjoy her stay with her cousins and not miss us too much.


Surgery aside Jessica is doing well at the moment. She is still enjoying school and going to Girls’ Brigade and ballet. She has started to tire a little more at ballet and will often sit out for part of the class. We also had our first (and second!) visit from the tooth fairy recently which Jessica was very excited about.




We will of course keep you updated as much as we can when we go into hospital. If you could keep us all in your thoughts and prayers over the coming weeks, that would be very much appreciated. 
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