Our beautiful daughter Jessica was born in September 2011 with a severe heart defect called hypoplastic left heart syndrome. This was diagnosed at her 20 week scan and we were initially told that she was unlikely to be suitable for surgery. However, a pioneering in-utero operation at 28 weeks to enlarge a hole in her atrial septum was carried out and she was able to make it to term and get through her first open-heart surgery at just eight hours old. Jessica underwent five more surgeries during her life. Her final surgery - the Fontan procedure - took place in December 2017. She initially made a good recovery but sadly passed away suddenly on 14th April 2018 at the age of 6. This is the story of a little girl whose half a heart overflowed with love. She was, and will forever be, our little miracle and brought joy to all who knew her.

Thursday 3 October 2013

Two year review

Jessica had her two year review with the health visitors today and they were very happy with her progress. Although some of her developmental milestones were reached a little later than usual, she seems to have caught up very well with other children of her age and is doing pretty much everything that is expected of her which is very good.   Her speaking vocabulary is slightly less than expected but as she is learning new words rapidly and her hearing appears to be absolutely fine, this is not a cause for concern. Her signing vocabulary is quite extensive now anyway and she certainly has no problem communicating with us using a combination of speaking and signing. One of her new words since our last update is ‘mummy’ (instead of her usual ‘mum-‘mum’) which is so wonderful to hear. ‘Daddy’ has been attempted a couple of times but she still prefers ‘Da!’ at the moment.



Jessica has been weighed today and is gaining weight beautifully – up to 11.8kg today (25lb 15oz) which is very encouraging particularly with her having a little bit of a picky eating phase lately. We have learned that these phases are usually very short-lived anyway particularly if we don’t make any fuss about them.


Jessica took another little step in showing what a big girl she is becoming when she used the potty for the very first time the other day. She isn’t yet at the stage of telling us regularly when she needs a nappy change (although has done so once or twice) so we are not trying to actively potty-train just yet (particularly with Pod’s arrival being fairly imminent!) but we have just been sitting her on it for a moment before her bath-time just to get her used to it.  She also showed what a big girl she is when she recently had a haircut and sat still on the stool all by herself without having to be held on Mummy's lap.


Auntie Maxine came to stay for a couple of days last week and Jessica loved spending time with her. We also had a day trip to Liverpool to keep Daddy company as he had to set up some equipment for an event there and Jessica enjoyed having a walk around Albert Dock with Mummy while Daddy was busy working. She loves to walk as much as possible now and has started to object to being put in her pushchair. She is certainly a very active toddler now and although she does occasionally get a little breathless after a while, she is generally coping very well with being constantly on the move.

2 comments:

  1. Even though you know how well Jessica is doing, it must be great to hear the team declare they are very happy with her progress.... And only a little breathless walking round the docks?- way to go Jessica! What a great big sister she will be. Elizabeth

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    1. Thanks Elizabeth - always reassuring to hear from the health team that she is doing well. Hope all is well with you x

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