Our beautiful daughter Jessica was born in September 2011 with a severe heart defect called hypoplastic left heart syndrome. This was diagnosed at her 20 week scan and we were initially told that she was unlikely to be suitable for surgery. However, a pioneering in-utero operation at 28 weeks to enlarge a hole in her atrial septum was carried out and she was able to make it to term and get through her first open-heart surgery at just eight hours old. Jessica underwent five more surgeries during her life. Her final surgery - the Fontan procedure - took place in December 2017. She initially made a good recovery but sadly passed away suddenly on 14th April 2018 at the age of 6. This is the story of a little girl whose half a heart overflowed with love. She was, and will forever be, our little miracle and brought joy to all who knew her.

Friday, 11 October 2013

A trip to A&E

We had a little trip to Wexham Park Hospital today after Jessica tripped over in the park and fell flat on her face, resulting in a nasty looking cut on the inside of her lip.  One of the things we worry about with something like this is the risk of Jessica getting endocarditis (an infection in her heart) and so we called the cardiac liaison nurse at Oxford to check whether we should be concerned.  She felt that it would be best to get it checked out as it might also need stitches.  Although we have open access to the children’s ward, the team there advised us to go to A&E instead and so our little trip to the park turned into a trip to A&E!  Thankfully, the cut doesn’t appear to require stitches and the doctors don’t feel that Jessica needs antibiotics although have advised us to go back if Jessica does show any sign of fever or infection.  In the meantime, she has a very bruised little lip but other than the initial upset when she first fell over, doesn’t appear too bothered, thankfully.  Hopefully it will heal well without any further concerns.



Other than our trip to A&E, life has been fairly quiet over the last week or so as we await Pod’s imminent arrival and make the most of still being able to give Jessica lots of one-to-one attention before she becomes a big sister.  She has been going to all her usual groups and enjoying herself, continuing to be a very happy little girl as always!


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