Our beautiful daughter Jessica was born in September 2011 with a severe heart defect called hypoplastic left heart syndrome. This was diagnosed at her 20 week scan and we were initially told that she was unlikely to be suitable for surgery. However, a pioneering in-utero operation at 28 weeks to enlarge a hole in her atrial septum was carried out and she was able to make it to term and get through her first open-heart surgery at just eight hours old. Jessica underwent five more surgeries during her life. Her final surgery - the Fontan procedure - took place in December 2017. She initially made a good recovery but sadly passed away suddenly on 14th April 2018 at the age of 6. This is the story of a little girl whose half a heart overflowed with love. She was, and will forever be, our little miracle and brought joy to all who knew her.

Sunday 5 February 2012

Feeding and fun in the snow

We are now back home with Jessica after her cardiac catheter and still trying to get back on track with her feeding. She is now breastfeeding well with the shields but hasn’t really been taking very much extra milk from either the nursing supplementer or the bottle as a top-up. As she has lost a little more weight, we have now started giving Infatrini top-ups in the hope that the extra calories in this will help her to start regaining weight.

Otherwise though, she is continuing to do well and is happy and alert. We had an evening out at an Indian restaurant with our accountant Shiraz and his wife Purveen on Friday and they got to meet Jessica for the first time. Jessica has also now experienced snow for the first time as she had a couple of minutes out in the garden with us earlier today and Auntie Maxine has come to stay for a couple of days.


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2 comments:

  1. elizabethinchurch6 February 2012 at 03:13

    Your Snow-Bunny looks a little apprehensive- but maybe she's just concerned that she'll have to grow antennae on her head to fill the pink ears ?
    Pleased your all back home again.Elizabeth

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  2. Louise10 February 2012 at 21:38

    Thanks Elizabeth - she wasn't too sure about the cold white stuff but we couldn't resist getting a few photos outside. Snow bunny is a good description - she's like a little pink teddy bear in her snow suit x

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