Our beautiful daughter Jessica was born in September 2011 with a severe heart defect called hypoplastic left heart syndrome. This was diagnosed at her 20 week scan and we were initially told that she was unlikely to be suitable for surgery. However, a pioneering in-utero operation at 28 weeks to enlarge a hole in her atrial septum was carried out and she was able to make it to term and get through her first open-heart surgery at just eight hours old. Jessica underwent five more surgeries during her life. Her final surgery - the Fontan procedure - took place in December 2017. She initially made a good recovery but sadly passed away suddenly on 14th April 2018 at the age of 6. This is the story of a little girl whose half a heart overflowed with love. She was, and will forever be, our little miracle and brought joy to all who knew her.

Monday 27 February 2012

Check-ups and classes

Jessica had a check-up in Oxford at the end of last week and all looks well at present. Her oxygen saturation levels are good and all seemed fine on the heart scan. As yet we don’t know when her next operation is likely to be – we anticipate it will be some time in the next few months but we don’t get the impression that there is any urgency at the moment, as Jessica is doing so well. We are continuing to have visits from the community nurse twice a week to monitor Jessica’s weight and oxygen saturation levels.

Jessica is gradually putting on weight – now up to 5120g (11lb 4oz) and is continuing to follow the 0.4th centile line. As she has had no symptoms of reflux since her feeding tube was removed, her reflux medication has been reduced and hopefully will be stopped altogether in a couple of weeks’ time.

We have had quite a sociable week – going out for dinner to celebrate Grandma’s birthday, going to the Pastiche Musical Theatre Group quiz night and going to a couple of baby groups. It has been lovely to start socialising more with other mums and babies and Jessica seems to be enjoying it. We started Tiny Talk baby signing classes last week – so far we have been practising the signs for milk, nappy and medicine which are the three signs which are likely to be used most at the moment!

Grandma is still receiving donations to Little Hearts Matter as a result of her birthday and these are now up to £765 which is fabulous – thank you once again to everyone for their generosity.

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