Our beautiful daughter Jessica was born in September 2011 with a severe heart defect called hypoplastic left heart syndrome. This was diagnosed at her 20 week scan and we were initially told that she was unlikely to be suitable for surgery. However, a pioneering in-utero operation at 28 weeks to enlarge a hole in her atrial septum was carried out and she was able to make it to term and get through her first open-heart surgery at just eight hours old. Jessica underwent five more surgeries during her life. Her final surgery - the Fontan procedure - took place in December 2017. She initially made a good recovery but sadly passed away suddenly on 14th April 2018 at the age of 6. This is the story of a little girl whose half a heart overflowed with love. She was, and will forever be, our little miracle and brought joy to all who knew her.

Saturday 24 December 2011

A good day on PICU

Jessica is continuing to do well and has had another good day on PICU. She has now come off the oxygen altogether which is fabulous and was able to have more cuddles with Mummy this afternoon. Her pacing wires have also been removed and the team are happy that she seems to making good progress and maintaining good oxygen saturation levels.

Jessica had a visit from Uncle Adrian in the morning and Louise’s friend Vicky popped in to say hello in the afternoon. We are hoping that we will be able to go up to Ocean Ward tomorrow (Christmas Eve) as Jessica has been doing so well. She is sleeping more normally and seems much more settled when she is awake as well and it is lovely to see her being more like her usual self again.

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2 comments:

  1. GClarkHellery24 December 2011 at 09:00

    Brilliant news. What an amazing little girl you have, who's lucky to have such fabulous parents! Merry Christmas xx

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  2. David Wilson24 December 2011 at 14:43

    Great news Michael - hope you have a truly Happy Christmas and Jessica's first Christmas is safe and lovely! Lots of love to you and yours, David x

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