Our beautiful daughter Jessica was born in September 2011 with a severe heart defect called hypoplastic left heart syndrome. This was diagnosed at her 20 week scan and we were initially told that she was unlikely to be suitable for surgery. However, a pioneering in-utero operation at 28 weeks to enlarge a hole in her atrial septum was carried out and she was able to make it to term and get through her first open-heart surgery at just eight hours old. Jessica underwent five more surgeries during her life. Her final surgery - the Fontan procedure - took place in December 2017. She initially made a good recovery but sadly passed away suddenly on 14th April 2018 at the age of 6. This is the story of a little girl whose half a heart overflowed with love. She was, and will forever be, our little miracle and brought joy to all who knew her.

Tuesday, 27 September 2011

Days 21 & 22 - Making good progress

It was a disappointing start to the week when Jessica was weighed on Monday morning and found to have lost 60g. When Jessica is being weighed on a daily basis, it is easy to get fixated on what that day’s weight is and lose sight of the bigger picture, so having a friend point out that Jessica had actually gained 80g over the week was very helpful. Still, it meant another chat with the dietician, having her nappies weighed again to keep an eye on her output and topping up with Infantrini after each breastfeed. Thankfully, her weight is up again this morning, by a whopping 160g, bringing her almost back to birth weight at 2530g (5lb 9oz).

Jessica has been completely off oxygen since yesterday morning and hasn’t even required an occasional waft of oxygen after a feed which is excellent progress. She is doing so well!

We have had lots of visitors over the last couple of days with various friends popping in to say hello and see Jessica – Natalie, Glenis, Clare and Jessica have met her for the first time and Gavin, Alex and Katy have also visited again.

It was also a nice unexpected surprise to have a visit from our lovely Oxford consultants, Dr Manning and Dr Archer, who were in Southampton for a meeting with the consultants here. They both seem pleased with how well Jessica is doing and got to meet her for the first time after seeing quite a lot of her on scan before she was born!

We should be seeing more of them over the next few days as the plan is to transfer to John Radcliffe tomorrow morning (assuming they have an available bed) and be cared for there for a while before hopefully then going home. We are taking another step nearer to being able to take Jessica home which is just amazing.

1 comment:

  1. Awesome news. So pleased for you all. Go Jessica. Sally (Gillian's friend).

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