Our beautiful daughter Jessica was born in September 2011 with a severe heart defect called hypoplastic left heart syndrome. This was diagnosed at her 20 week scan and we were initially told that she was unlikely to be suitable for surgery. However, a pioneering in-utero operation at 28 weeks to enlarge a hole in her atrial septum was carried out and she was able to make it to term and get through her first open-heart surgery at just eight hours old. Jessica underwent five more surgeries during her life. Her final surgery - the Fontan procedure - took place in December 2017. She initially made a good recovery but sadly passed away suddenly on 14th April 2018 at the age of 6. This is the story of a little girl whose half a heart overflowed with love. She was, and will forever be, our little miracle and brought joy to all who knew her.

Wednesday 21 September 2011

Days 15 & 16 - Focusing on feeding

There was some good news on Tuesday morning when Jessica was weighed and found to have gained 20g bringing her weight up to 2310g (5lb 1oz) – it looked like the extra top-ups of fortified expressed milk were helping.

Our friends Gavin and Alex came to meet Jessica in the afternoon, as did Louise's friend Carole, who is one of her midwifery colleagues.

Jessica was being a little milk monster in the evening and was feeding almost continuously from about 7pm to 2am. Louise was hoping that all this extra feeding was going to result in some weight gain for Jessica in the morning so it was a bit disappointing to discover that Jessica’s weight was still the same when she was reweighed.

As the day wore on, it became apparent that stress and the challenges of trying to eat and drink properly had been taking their toll on Louise’s milk supply as Jessica was wanting to feed more and more frequently and was no longer settling after feeds and Louise was also struggling to produce extra milk when expressing to give as a top-up. Although we had hoped that we would just be able to give Jessica breastmilk, it was clear that she needed more than Louise could produce and so has started having some formula top-ups after each feed. Hopefully a few days of being more vigilant about eating and drinking enough and trying to rest will help with the supply of mummy milk.

Jessica had some more visitors in the evening – Katy popped in again to say hello as did Uncle Adrian and Auntie Julie and she also got to meet cousin Dawn for the first time.

1 comment:

  1. Such a beautiful little face, bless her! Mummy, you must look after yourself. xx

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