Our beautiful daughter Jessica was born in September 2011 with a severe heart defect called hypoplastic left heart syndrome. This was diagnosed at her 20 week scan and we were initially told that she was unlikely to be suitable for surgery. However, a pioneering in-utero operation at 28 weeks to enlarge a hole in her atrial septum was carried out and she was able to make it to term and get through her first open-heart surgery at just eight hours old. Jessica underwent five more surgeries during her life. Her final surgery - the Fontan procedure - took place in December 2017. She initially made a good recovery but sadly passed away suddenly on 14th April 2018 at the age of 6. This is the story of a little girl whose half a heart overflowed with love. She was, and will forever be, our little miracle and brought joy to all who knew her.

Monday, 11 March 2013

Hospital visits




Jessica had a couple of hospital visits last week – the first was at King Edward VII Hospital for her eye check-up on Monday.  The team there have now decided that it is time to try glasses to see if this helps her squint so we have a prescription for glasses – we just need to go and get them now and then the challenge will be getting Jessica to wear them!  She also had a dental check-up on Monday and got a sticker for being a very good girl there.

 
On Tuesday, we had a check-up with the paediatrician at Wexham Park.  Jessica weighed in at 9660g (21lb 4oz) so is staying on the 25th centile for this and height was 76.7cm which keeps her on the 2nd centile for height (so far taking after Mummy rather than Daddy!).   She had been a little unwell in the couple of days before the appointment but her sats were 84 when checked by the paediatrician so all seemed well.  However, shortly after getting home, Jessica went a bit blue and when her sats were re-checked they had dropped to 65 so we went back in again.  Her sats did pick up again back into the 80s (still not quite sure what caused the drop) and we were back home after a few hours on the paediatric assessment unit with a diagnosis of a viral ear and throat infection.  Thankfully a couple of days of regular doses of Calpol and lots of snuggles seemed to do the trick and Jessica seems much better again this week.


Having helped Grandma celebrate her birthday a few weeks ago, it was Nanny’s turn for birthday celebrations at the weekend and Jessica enjoyed seeing her aunties and uncles and having lots of cuddles with them all.


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