Our beautiful daughter Jessica was born in September 2011 with a severe heart defect called hypoplastic left heart syndrome. This was diagnosed at her 20 week scan and we were initially told that she was unlikely to be suitable for surgery. However, a pioneering in-utero operation at 28 weeks to enlarge a hole in her atrial septum was carried out and she was able to make it to term and get through her first open-heart surgery at just eight hours old. Jessica underwent five more surgeries during her life. Her final surgery - the Fontan procedure - took place in December 2017. She initially made a good recovery but sadly passed away suddenly on 14th April 2018 at the age of 6. This is the story of a little girl whose half a heart overflowed with love. She was, and will forever be, our little miracle and brought joy to all who knew her.

Tuesday, 26 March 2013

A quiet week




Jessica is now much better although last week’s vomiting bug definitely knocked her for six and it was a good few days before her energy levels and appetite got back to more normal levels.  As a result, it has been quite a quiet week, with just spending most of her time at home having lots of cuddles and playing with her toys.  She has been very proud of herself as she has learnt a few new things this week – she has worked out how to stack the rings on the stacking ring pole and gives herself a little round of applause every time she gets one on there!  She has also added a few new signs to her repertoire – ‘thank you’ (our personal favourite!), ‘sleep’ and ‘cow’.  

 
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