Our beautiful daughter Jessica was born in September 2011 with a severe heart defect called hypoplastic left heart syndrome. This was diagnosed at her 20 week scan and we were initially told that she was unlikely to be suitable for surgery. However, a pioneering in-utero operation at 28 weeks to enlarge a hole in her atrial septum was carried out and she was able to make it to term and get through her first open-heart surgery at just eight hours old. Jessica underwent five more surgeries during her life. Her final surgery - the Fontan procedure - took place in December 2017. She initially made a good recovery but sadly passed away suddenly on 14th April 2018 at the age of 6. This is the story of a little girl whose half a heart overflowed with love. She was, and will forever be, our little miracle and brought joy to all who knew her.

Wednesday, 27 February 2013

Stepping out with my baby




Jessica is getting increasingly confident with cruising around the furniture and walking with the baby walker or holding Mummy or Daddy’s hands.  She prefers walking whilst holding both hands as she is still quite wobbly but she has managed to walk holding one hand only and was very proud of herself.  She has also learnt how to crawl upstairs so is really starting to get around now.


Jessica has enjoyed being a little social butterfly over the last couple of weeks.  She enjoyed catching up with the family at cousin Craig & Charlie’s wedding a few days ago – her seventh wedding so far which is pretty good going for not quite eighteen months old!  She also helped Grandma celebrate her birthday recently.


Jessica has had a bit of a cold recently but is much better now although sleeping has been a bit disrupted again recently.  In the last couple of weeks, she has also stopped breastfeeding and having Infatrini - just on to cow’s milk now.


As always though, Jessica continues to be very smiley and happy.  She has another check-up with the ophthalmology department at Windsor next week for her squint and is also due to see the paediatrician at Wexham Park next week too.


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