Our beautiful daughter Jessica was born in September 2011 with a severe heart defect called hypoplastic left heart syndrome. This was diagnosed at her 20 week scan and we were initially told that she was unlikely to be suitable for surgery. However, a pioneering in-utero operation at 28 weeks to enlarge a hole in her atrial septum was carried out and she was able to make it to term and get through her first open-heart surgery at just eight hours old. Jessica underwent five more surgeries during her life. Her final surgery - the Fontan procedure - took place in December 2017. She initially made a good recovery but sadly passed away suddenly on 14th April 2018 at the age of 6. This is the story of a little girl whose half a heart overflowed with love. She was, and will forever be, our little miracle and brought joy to all who knew her.

Tuesday, 9 January 2018

Post-Fontan recovery: Day 11 (Ocean Ward)

It was back to school for Jessica yesterday! We had a visit from the teacher at the hospital school in the morning who then did a reading session with Jessica in the afternoon. She’ll be dual-registered at the hospital school (along with her normal school) while she is in hospital which will count as school attendance during this time. There is a classroom up on G level which children can go to if they able; otherwise the teachers can come to the bedside and do a couple of teaching sessions each day.


Jessica with the Pets as Therapy dog


Jessica had fun in the morning doing some beading with the play worker and also got to meet Archie, the Pets as Therapy dog who came for a visit. She was thrilled to receive a couple of parcels in the post in the morning with some sweets, colouring/activity books and hand-made cards from everyone in her Girls’ Brigade company.



Jessica with her cards and sweets from her friends at Girls Brigade


Recovery-wise, Jessica continues to make gentle progress. She manage to eat a little more yesterday although we weren’t very impressed when the hospital catering company failed to provide any supper for her ward. It took three phone calls from the nurses before they finally sent someone up with snacks and sandwiches at 7.30pm. Hopefully today’s meals will arrive as normal!


At the moment, the focus is on continuing to wean Jessica’s oxygen down and to keep encouraging her to eat and drink a little more.

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