Significant decisions

The last couple of days have been quite significant with regards to planning Jessica’s future.  Yesterday we received confirmation that Jessica has been given a place at our local village infant school (our first choice) to start in September.  Today we received a call from Southampton to book us in for Jessica’s cardiac catheter procedure – the first step on the road to her Fontan procedure.  This is now booked in for Tuesday 7th June.  We will be going in the day before for all the various tests that need to take place before the cardiac catheter itself and will possibly need to stay overnight on the day of the catheter itself.

We don’t yet know how likely it is that Jessica’s Fontan will be planned before she starts school.  I suspect that this will depend on the findings from the cardiac catheter procedure and we will know more once that has taken place.  We have received a letter from Jessica’s consultant with more details about the findings from her last appointment which has confirmed that Jessica’s cardiac state is stable and whilst she has had episodes of low sats, these were mostly due to having a chest infection.  She’s certainly seemed well in herself over the last few weeks and we’ve had no concerns.

Last week saw the fourth anniversary of Jessica’s Glenn procedure – another reminder of just how far she has come.  Those four years seem to have gone by in the blink of an eye! With a little over four months left before Jessica is due to start school, we’re hoping the time won’t speed by too quickly though! In the meantime, we’ll enjoy getting out and about in the (hopefully) nice weather and try to make the most of not yet being restricted by school timetables!