The last couple of days have been quite
significant with regards to planning Jessica’s future. Yesterday we received confirmation that
Jessica has been given a place at our local village infant school (our first
choice) to start in September. Today we
received a call from Southampton to book us in for Jessica’s cardiac catheter
procedure – the first step on the road to her Fontan procedure. This is now booked in for Tuesday 7th June. We will be going in the day before for all
the various tests that need to take place before the cardiac catheter itself
and will possibly need to stay overnight on the day of the catheter itself.
We don’t yet know how likely it is that
Jessica’s Fontan will be planned before she starts school. I suspect that this will depend on the
findings from the cardiac catheter procedure and we will know more once that
has taken place. We have received a
letter from Jessica’s consultant with more details about the findings from her
last appointment which has confirmed that Jessica’s cardiac state is stable and
whilst she has had episodes of low sats, these were mostly due to having a
chest infection. She’s certainly seemed
well in herself over the last few weeks and we’ve had no concerns.
Last week saw the fourth anniversary of
Jessica’s Glenn procedure – another reminder of just how far she has come. Those four years seem to have gone by in the
blink of an eye! With a little over four months left before Jessica is due to
start school, we’re hoping the time won’t speed by too quickly though! In the
meantime, we’ll enjoy getting out and about in the (hopefully) nice weather and
try to make the most of not yet being restricted by school timetables!
