Our beautiful daughter Jessica was born in September 2011 with a severe heart defect called hypoplastic left heart syndrome. This was diagnosed at her 20 week scan and we were initially told that she was unlikely to be suitable for surgery. However, a pioneering in-utero operation at 28 weeks to enlarge a hole in her atrial septum was carried out and she was able to make it to term and get through her first open-heart surgery at just eight hours old. Jessica underwent five more surgeries during her life. Her final surgery - the Fontan procedure - took place in December 2017. She initially made a good recovery but sadly passed away suddenly on 14th April 2018 at the age of 6. This is the story of a little girl whose half a heart overflowed with love. She was, and will forever be, our little miracle and brought joy to all who knew her.

Tuesday, 30 September 2014

Another good check-up

Jessica had her paediatric check-up at Wexham Park this morning and all was well.  Her sats were great again – staying around 85 at the moment which is really good for Jessica – and the team are happy not to see her in the paediatric clinic again until April next year which is good, although we do have a cardiac clinic appointment booked for late January. 


Jessica was a little unwell with a sick bug over the weekend but thankfully this was short-lived and we didn’t repeat the experience of having to go to hospital as was the case last time she had a sick bug.  Sadly it meant though that she missed going to a friend’s birthday party and stayed at home with Daddy whilst Mummy did another fundraising coffee morning at church for Little Hearts Matter (thank you to all who came and helped us to raise £60).


Other than the little blip of being unwell though, we’ve had a nice month on the whole – Jessica has enjoyed another day out at Legoland, going blackberry picking, helping Mummy bake scones and biscuits and lots of time just enjoying the nice weather we’ve been having recently and making the most of the sunshine before autumn takes hold.  


We’ve entered Jessica and Sophie to be Little Tikes Tiny Testers – if you can spare a minute to visit the Little Tikes website and vote for them both (voting closes on 1st October at midday), that would be fabulous.  You can vote for Jessica here and for Sophie here.


Little Hearts Big Love

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