Our beautiful daughter Jessica was born in September 2011 with a severe heart defect called hypoplastic left heart syndrome. This was diagnosed at her 20 week scan and we were initially told that she was unlikely to be suitable for surgery. However, a pioneering in-utero operation at 28 weeks to enlarge a hole in her atrial septum was carried out and she was able to make it to term and get through her first open-heart surgery at just eight hours old. Jessica underwent five more surgeries during her life. Her final surgery - the Fontan procedure - took place in December 2017. She initially made a good recovery but sadly passed away suddenly on 14th April 2018 at the age of 6. This is the story of a little girl whose half a heart overflowed with love. She was, and will forever be, our little miracle and brought joy to all who knew her.

Sunday 17 March 2013

Back in Wexham Park

Jessica is back in Wexham Park Hospital as she has come down with a tummy bug and wasn't managing to keep fluids or her meds down at home.  We came in yesterday afternoon and since then Jessica has just been taking very frequent and very small amounts of dioralyte.  Thankfully she has managed to keep the dioralyte down so far and has not needed to have IV fluids but the team here are keeping a close eye on her fluid intake at the moment.  She has also been started on antibiotics as she also has an ear infection which has been giving her some quite high temperatures at times.


Jessica needed oxygen overnight to keep her sats above 76 but today is a little better and has only needed the occasional waft of oxygen.  She has been quite listless and sad today and so has been having lots of Mummy snuggles.  Hopefully she will start feeling better soon and back home again.
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