Our beautiful daughter Jessica was born in September 2011 with a severe heart defect called hypoplastic left heart syndrome. This was diagnosed at her 20 week scan and we were initially told that she was unlikely to be suitable for surgery. However, a pioneering in-utero operation at 28 weeks to enlarge a hole in her atrial septum was carried out and she was able to make it to term and get through her first open-heart surgery at just eight hours old. Jessica underwent five more surgeries during her life. Her final surgery - the Fontan procedure - took place in December 2017. She initially made a good recovery but sadly passed away suddenly on 14th April 2018 at the age of 6. This is the story of a little girl whose half a heart overflowed with love. She was, and will forever be, our little miracle and brought joy to all who knew her.

Tuesday 19 June 2012

Rolling, eye checks and social visits



Over the last couple of weeks, Jessica has been doing really well and has started to roll at last – mostly from back to front although has managed to roll back again once or twice.  We are now often finding her asleep on her tummy in the cot during the night.  Now that she is able to roll on to her tummy and lift her head well, she has become a lot happier with tummy time when playing and is really starting to build up her muscle strength now.  She continues to gain weight beautifully and now weighs 6390g (14lb 1oz) and her oxygen saturation levels are still good.  


She had her eye appointment earlier today and the orthoptist has confirmed that she does have a squint although as it goes from one eye to the other neither eye appears to be particularly dominant at the moment, which is a good thing.  We will be having another appointment in a few months’ time for a further vision check.


It has been lovely having Michael back home again after all his trips abroad last month.  Jessica was very excited to see her daddy at the airport when he arrived home!  Michael has also enjoyed his first Father’s Day and had some lovely cards and presents from Jessica.


It has been quite a sociable couple of weeks for Jessica.  She met Great-Auntie Pauline, Great-Auntie Jackie, Great-Auntie Shirley, Great-Uncle Peter and Great-Uncle Dave for the first time as well as seeing a couple of her other aunties and uncles and cousins.  On a sad note, she also attended her first funeral to say goodbye to Hilda, a lovely lady from our church.  There were also more goodbyes to cousins Clare, Andrew, Seren and Sian who were moving abroad.



Jessica also went along to the AGM for our local Churches Together.  Last year, the AGM was just before the in-utero surgery and we were very blessed to have everyone at the AGM praying for Jessica.  It was wonderful to be able to be back with everyone a year on and show just what miracles God has performed in our lives in the past year – thank you once again to everyone who has been keeping us in their thoughts and prayers throughout this journey.


1 comment:

  1. It's so lovely to see Jessica doing so well; she's such a beautiful, smiley baby. We look forward to seeing all three of you soon.

    Neil and Sandra xx

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