The next step approaches

We now have a date for the next operation, the Glenn procedure, and this should take place next Wednesday, 4th April. This procedure involves connected Jessica’s pulmonary artery (the main artery between the heart and lungs) to her superior vena cava (the main vein from the top half of her body). This allows the deoxygenated blood from the top half of her body to flow to her lungs without being pumped. This was originally attempted at her last surgery but had to be reversed as the pressures in the blood vessels were too high for this to work. The latest cardiac catheter indicates that the pressures are now low enough but of course we are quite anxious as we anticipate this next round of surgery.

Jessica’s oxygen saturation levels have been a little more reassuring since Friday’s appointment which is a relief and she has also gained a little more weight, now weighing in at 5320g (11lb 11oz). Feeding has been a bit of a challenge as she hasn’t been quite so keen on the Infatrini over the last couple of days so getting her to take the extra top-ups has been tricky at times. On the plus side, she is doing much better with her solids and managed a whole pot of pear purée this afternoon which was fabulous.

Whilst we know from her weight and the oxygen saturations that the next stage operation needs to happen sooner rather than later, we feel a little overwhelmed by how quickly things are moving along and would be very grateful for your thoughts and prayers as we prepare for this next step on Jessica’s journey. We will be going back into hospital next Tuesday to prepare for the surgery and will keep you updated as to how Jessica gets on.