Making good progress

We have had Nanny come to stay with us over the last week or so which has been wonderful – Jessica has been enjoying lots of cuddles and Louise has been very thankful for all the help and support that she has been getting from her mum!

Jessica is continuing to do well and her oxygen saturation levels are generally staying in the mid to high 70s which is good. The diuretics that she was taking have now been stopped and so far she seems to be coping well without them. She is getting quite a big girl now – her weight yesterday was 5050g (11lb 2oz) and she is now above the 0.4^th centile line and almost on the 2^nd centile line. She is still having the Monogen mainly by tube and is mostly keeping it down. The six weeks of Monogen end on Sunday and hopefully Jessica will be able to breastfeed again. Louise has been expressing regularly over the past weeks to maintain her supply and the donor milk bank in Southampton has benefited from some of the surplus milk! We are hoping that the chylothorax will have healed and that Jessica will be able to cope with having mummy milk again.

We are due to go back to Southampton next week for Jessica’s next cardiac catheter investigation which is due to take place on 2^nd February. This will check the pressures in the blood vessels around Jessica’s heart and lungs and will help to plan when the next procedure is likely to take place. We anticipate that we will be in hospital for a couple of days whilst this takes place and will be keeping you posted as to how she gets on.