Our beautiful daughter Jessica was born in September 2011 with a severe heart defect called hypoplastic left heart syndrome. This was diagnosed at her 20 week scan and we were initially told that she was unlikely to be suitable for surgery. However, a pioneering in-utero operation at 28 weeks to enlarge a hole in her atrial septum was carried out and she was able to make it to term and get through her first open-heart surgery at just eight hours old. Jessica underwent five more surgeries during her life. Her final surgery - the Fontan procedure - took place in December 2017. She initially made a good recovery but sadly passed away suddenly on 14th April 2018 at the age of 6. This is the story of a little girl whose half a heart overflowed with love. She was, and will forever be, our little miracle and brought joy to all who knew her.

Friday 11 November 2011

9 weeks - Check-ups and cuddles

It has been a busy week for Jessica – we have had a check-up at Wexham Park Hospital (so that the paediatric team could meet her and become more familiar with her medical condition just in case we need to take Jessica there at any point), our weekly check with the community nurse and Jessica also had her first set of immunisations. Needless to say, she was not very impressed at having these done and was a little unsettled for a day or so afterwards but then was back to her usual happy self.

Nanny came to stay for a few days which was fabulous – she enjoyed having lots of cuddles with Jessica and magically made the ironing pile disappear and a pile of freshly ironed clothes appear which made Louise very happy! Auntie Loraynne, Auntie Maxine and Auntie Twinny also visited as did our friend Sarah, who got to finally meet Jessica.

Jessica is continuing to gain weight – now up to 3440g (7lb 9oz) and she also slept through the night for the first time which was very impressive! She is starting to grow out of her small baby clothes and filling out the newborn ones a little more.

We will be heading to Southampton tomorrow as Michael is involved in setting up sound and lighting for a fundraiser concert there and so we will be staying with friends before going to the hospital on Sunday morning ready for the catheter procedure. We will keep you updated over the next few days as to how we get on. As the next step approaches, we are finding ourselves getting a little more anxious and praying very hard that Jessica will cope well with this next procedure and that the news will be encouraging.

1 comment:

  1. She looks so much like Michael in the 'sleeping' photo and I can't believe how much she's grown! Will be thinking of you as the next steps come closer. Big hugs Geri & Matt x

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