Our beautiful daughter Jessica was born in September 2011 with a severe heart defect called hypoplastic left heart syndrome. This was diagnosed at her 20 week scan and we were initially told that she was unlikely to be suitable for surgery. However, a pioneering in-utero operation at 28 weeks to enlarge a hole in her atrial septum was carried out and she was able to make it to term and get through her first open-heart surgery at just eight hours old. Jessica underwent five more surgeries during her life. Her final surgery - the Fontan procedure - took place in December 2017. She initially made a good recovery but sadly passed away suddenly on 14th April 2018 at the age of 6. This is the story of a little girl whose half a heart overflowed with love. She was, and will forever be, our little miracle and brought joy to all who knew her.

Wednesday 2 May 2018

Jessica's funeral details

We have been busy over the last week making arrangements for Jessica’s final journey. It has been incredibly tough and reality has hit us very hard at times. We have chosen the spot for Jessica’s forever bed at GreenAcres, picked out her casket and the last set of clothes she will wear and started to consider the details for the service celebrating her life. We can now confirm the timings and location for the celebration and wake, which are as follows:


Celebration of Jessica’s life


Friday 18th May 2018, 1pm at Christ Church, Redford Way, Uxbridge UB8 1SZ

Tea and coffee will be available after the service



Jessica playing the drums at Chessington



Please note that the church car park will be reserved for blue badge holders and the close family members who will be attending Jessica’s burial at GreenAcres.


There is plenty of parking available nearby. The nearest car parks to the church are the Sainsburys car park and the Cedars car park. You can park in Sainsburys for a maximum of 2 hours for £2. Please note that there is ANPR in this car park so don’t exceed the maximum stay of 2 hours. The Cedars car park costs £1.40 for 2 hours for non-Hillingdon residents. There is no maximum stay in this car park, other than being limited to car park opening times (it closes in the evening after the shops shut). There is also on-street parking on Belmont Road although this is very expensive, especially for non-Hillingdon residents and the meters have a tendency to swallow coins. We’d advise parking in Sainsburys or the Cedars instead.


For those coming by public transport, Christ Church is opposite the bus station and Uxbridge underground station. If you are coming by train, you need to exit the station by the side entrance (heading towards the bus station) rather than the High Street entrance.


We would like to ask for donations to Little Hearts Matter instead of any flowers please. The JustGiving page that was set up previously by one of Louise's blogging friends has now closed, but we have set up another JustGiving page if you would like to donate through this.



Jessica’s burial

This will take place at GreenAcres at 3pm and will be a private service for the immediate family and Jessica’s godparents.


Wake

You are welcome to join us for the wake following the celebration of Jessica’s life. This will be held at Chalfont St Peter Community Centre, Gravel Hill, Chalfont St Peter, Bucks, SL9 9QX from 3pm. Tea and coffee and refreshments will be available here.


There is an on-site car park at the community centre and parking is free here. If this car park is full, there is a nearby car park in Church Lane. There is a charge for parking in the Church Lane car park which you can pay at the machines or by mobile phone.


One of Michael's colleagues will be providing minibus transport from the church to Chalfont St Peter Community Centre if you are coming by public transport - thank you Oliver!


If you are thinking of joining us for the celebration of Jessica’s life and/or the wake afterwards, please could you let us know by filling in a very short form here if you haven’t already done so. This is just so we have an idea of what numbers we can expect to help us with some of the practical arrangements.We would also like to ask that people avoid wearing dark coloured clothing if possible.



Thank you for continuing to keep us in your thoughts and prayers. We are very much taking things moment by moment right now and trying to get through each day as best we can.




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