Our beautiful daughter Jessica was born in September 2011 with a severe heart defect called hypoplastic left heart syndrome. This was diagnosed at her 20 week scan and we were initially told that she was unlikely to be suitable for surgery. However, a pioneering in-utero operation at 28 weeks to enlarge a hole in her atrial septum was carried out and she was able to make it to term and get through her first open-heart surgery at just eight hours old. Jessica underwent five more surgeries during her life. Her final surgery - the Fontan procedure - took place in December 2017. She initially made a good recovery but sadly passed away suddenly on 14th April 2018 at the age of 6. This is the story of a little girl whose half a heart overflowed with love. She was, and will forever be, our little miracle and brought joy to all who knew her.

Monday, 23 April 2018

Making arrangements for Jessica’s final journey

The last week has been such a huge rollercoaster of emotions. There are times when we can’t quite believe that Jessica has gone and then in the next moment, reality hits and we are consumed by our pain. Sophie has been coping well on the whole, but she does now realise that Jessica will not be coming home again and there are moments when she breaks her little heart over the loss of her sister and playmate.

Jessica and Sophie having a cuddle in Langley Park

We are thankful that we were able to visit Jessica at Wexham Park a couple of times before she was transferred to the John Radcliffe last Wednesday. The post-mortem was carried out on Thursday and at present, the cause of her death remains unknown. The pathologist has taken tissue samples for testing and it will be a few weeks before we know the results from these. In the meantime though, the coroner has been able to issue an interim death certificate to allow us to go ahead with funeral arrangements.

We will be having a celebration of Jessica’s life at our church in Uxbridge (Christ Church) on Friday 18th May in the early afternoon. Jessica will then be taken to GreenAcres Chiltern woodland burial ground in Seer Green which will be her final resting place. This will then be followed by a wake somewhere nearby. We will confirm the details of timing and locations on this blog once we know them ourselves. It would help us if you could let us know if you would like to attend the celebration and/or the wake after Jessica’s burial by filling in the form here. This is just so we have an idea of rough numbers to expect which will help us with some of the practical arrangements.

Sophie walking through GreenAcres Chilterns

Thank you all so much for your love and support since Jessica’s passing. We have received so many cards, flowers and little gifts for Sophie and your kind words have helped us know that we are surrounded by love and prayers. Thank you too to everyone who donated to the JustGiving page which has raised over £6,000 (inc. Gift Aid) for Little Hearts Matter.

1 comment:

  1. Hi Louise, i'm afraid i will be unable to attend but i will be with you all in prayer and spirit. x