Our beautiful daughter Jessica was born in September 2011 with a severe heart defect called hypoplastic left heart syndrome. This was diagnosed at her 20 week scan and we were initially told that she was unlikely to be suitable for surgery. However, a pioneering in-utero operation at 28 weeks to enlarge a hole in her atrial septum was carried out and she was able to make it to term and get through her first open-heart surgery at just eight hours old. Jessica underwent five more surgeries during her life. Her final surgery - the Fontan procedure - took place in December 2017. She initially made a good recovery but sadly passed away suddenly on 14th April 2018 at the age of 6. This is the story of a little girl whose half a heart overflowed with love. She was, and will forever be, our little miracle and brought joy to all who knew her.

Wednesday 7 January 2015

Jessica starts preschool

Jessica took another significant step on her journey today, taking her first steps into independence as she started preschool for the very first time.  She was very excited about going and a passer-by seeing her waiting at the gate would have thought she’d been going to preschool for weeks – she was waving at all the other children and saying hello even though she didn’t know any of them! Once inside, she barely waited long enough for Mummy to take her coat and boots off and give her a kiss goodbye before she was off to play with the toys.


 The morning seemed quite long and quiet without Jessica’s chatter, singing and impulsive hugs but Sophie enjoyed having some one-to-one time with Mummy for a change.  At pickup time, Louise was a little disappointed that nothing was said about how Jessica had got on although Jessica seemed happy and said she’d enjoyed herself.  Louise called the preschool later in the afternoon to find out more about how Jessica had got on and found out that Jessica’s key worker was absent today due to a family emergency and a miscommunication amongst the preschool staff meant that everyone thought that someone else had given the update.  Jessica had enjoyed playing with Minnie Mouse and Daisy Duck dress-up figures, had had some time playing outside and had been very chatty and sociable.  She’d asked for Mummy once whilst having her nappy changed, telling the preschool staff that she wanted to cuddle Mummy but otherwise had been fine with being left.

It is lovely to see how sociable and friendly Jessica is and how well she has coped with this little milestone.  It was the first time that she has been left with people we don’t know since her stays in hospital and it certainly felt like a big step from our perspective.

In other news, we are still having big issues with trying to obtain one of Jessica’s medications as all the pharmacies we have contacted in the local area are out of stock with no idea of when it will be back in stock again.  We should just about have enough to last until the next cardiac check-up at the end of this month and the cardiac nurses are aware so hopefully we will be able to find a solution to this problem.

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