Our beautiful daughter Jessica was born in September 2011 with a severe heart defect called hypoplastic left heart syndrome. This was diagnosed at her 20 week scan and we were initially told that she was unlikely to be suitable for surgery. However, a pioneering in-utero operation at 28 weeks to enlarge a hole in her atrial septum was carried out and she was able to make it to term and get through her first open-heart surgery at just eight hours old. Jessica underwent five more surgeries during her life. Her final surgery - the Fontan procedure - took place in December 2017. She initially made a good recovery but sadly passed away suddenly on 14th April 2018 at the age of 6. This is the story of a little girl whose half a heart overflowed with love. She was, and will forever be, our little miracle and brought joy to all who knew her.

Wednesday 13 July 2011

Scan update - 2 weeks post-surgery

It is hard to believe that this time two weeks ago we were undergoing surgery to help improve Jessica's odds of survival. The scan carried out the day after the procedure indicated that there was some improvement in blood flow through one of the pulmonary veins but that the blood flow through the other seemed similar to before.

Since then, we have had two further scans - one last week and one today. At present, the picture still seems to be pretty much the same - there is some improvement in blood flow, but there still appears to be high pressure in the left atrium and at present, the plan remains for comfort care after birth. We are continuing to pray that there will be further improvement and that surgery will become an option (it would still be too early for any surgery to be carried out in any case if Jessica decided to arrive in the next couple of weeks).

Jessica still appears to be coping well - she is certainly very wriggly still and tends to get hiccups quite frequently so all seems to be good on that front. At present, there are no signs that her heart condition is causing her any problems and hopefully this will continue to be the case until she is born. She is also growing well - estimated weight at the moment is about 3lb 1oz.

Our next scan is in a couple of weeks - hopefully there will be further improvement to report at that stage.

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