Our beautiful daughter Jessica was born in September 2011 with a severe heart defect called hypoplastic left heart syndrome. This was diagnosed at her 20 week scan and we were initially told that she was unlikely to be suitable for surgery. However, a pioneering in-utero operation at 28 weeks to enlarge a hole in her atrial septum was carried out and she was able to make it to term and get through her first open-heart surgery at just eight hours old. Jessica underwent five more surgeries during her life. Her final surgery - the Fontan procedure - took place in December 2017. She initially made a good recovery but sadly passed away suddenly on 14th April 2018 at the age of 6. This is the story of a little girl whose half a heart overflowed with love. She was, and will forever be, our little miracle and brought joy to all who knew her.

Thursday 14 July 2011

Cordocentesis results

We have now got the results back from the cordocentesis (a test which uses the blood from the umbilical cord to check for any genetic abnormalities) and thankfully the results of this have come back completely normal. Although our consultants had already told us that they didn't think Jessica's heart condition was linked to any genetic abnormality, it is still quite a relief to have this confirmed.

The test has also confirmed that baby Jessica is definitely a little girl (it would have been quite a shock if it hadn't given the number of scans we have had so far, but nice to be able to be completely certain now).
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