Our beautiful daughter Jessica was born in September 2011 with a severe heart defect called hypoplastic left heart syndrome. This was diagnosed at her 20 week scan and we were initially told that she was unlikely to be suitable for surgery. However, a pioneering in-utero operation at 28 weeks to enlarge a hole in her atrial septum was carried out and she was able to make it to term and get through her first open-heart surgery at just eight hours old. Jessica underwent five more surgeries during her life. Her final surgery - the Fontan procedure - took place in December 2017. She initially made a good recovery but sadly passed away suddenly on 14th April 2018 at the age of 6. This is the story of a little girl whose half a heart overflowed with love. She was, and will forever be, our little miracle and brought joy to all who knew her.

Thursday 9 November 2017

A new date for the Fontan

We had a phone call this morning to let us know that Jessica’s Fontan has been re-booked for Tuesday 21st November. We will now be going in to Ocean Ward on Monday 20th ready for this. Jessica is very pleased to have a new date and to know how many sleeps she has to count down until her “sleepover” at the doctors’.

Me, hubby, Jessica and Sophie at Langley Park

We had a lovely afternoon yesterday at Langley Park to help cheer Jessica up after her disappointment of her “sleepover” being postponed. It was nice for us to be able to enjoy some family time together, especially as Michael has had to be away so much lately. Hopefully we will be able to make the most of having some family time now that things are quieter for him on the work front!

Please continue to keep us all in your thoughts and prayers as we start to prepare once again for Jessica’s surgery and her stay in hospital. We will update again when we go in on 20th November. 

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