Jessica’s Fontan has had to be postponed once again. We were
told this morning that her surgeon, Mr Viola, is unwell and that PICU is also
full at the moment which means that her surgery needs to be rescheduled once
again. As yet, we don’t know what the new
date will be. In the meantime, it’s back home again while we wait, and back to
making the most of normality.
Jessica is very disappointed about her surgery being
postponed yet again. She had a good night and had started IV fluids a few hours
before we found out about the surgery being postponed. She soon discovered that
she could ride her IV pole like a scooter and that the most fun way of getting
around the ward was to stand on it and let Mummy push her around. I was
relieved that she’d only had her breakfast a couple of hours before and hadn’t
had a long period of being nil by mouth before finding out, as had happened
when her Glenn was postponed.
It is hard to have to go home and go through all the
build-up yet again but it can’t be helped. We will continue to hold on to our
faith that the surgery will happen at the right time for Jessica. We also found
out after being told that Jessica’s surgery had to be cancelled that her bloods
showed that her CRP levels were a little raised. This suggests that she might
be brewing an infection. She and Sophie have both had coughs and colds recently
(which they seem to be passing back and forth!) Hopefully having a little longer
to wait will help her get rid of the winter bugs too.
We popped in to visit Godmummy Katy after leaving the hospital which helped to cheer Jessica up, before heading to Nanny's to pick up Sophie after her sleepover. It is lovely to have our family reunited again even though we know we have it all to come once again!
We will update again when we have been given a new date.
Thank you again for keeping us in your thoughts and prayers so far. It helps so
much to know that our little girl is surrounded by so much love.