Our beautiful daughter Jessica was born in September 2011 with a severe heart defect called hypoplastic left heart syndrome. This was diagnosed at her 20 week scan and we were initially told that she was unlikely to be suitable for surgery. However, a pioneering in-utero operation at 28 weeks to enlarge a hole in her atrial septum was carried out and she was able to make it to term and get through her first open-heart surgery at just eight hours old. Jessica underwent five more surgeries during her life. Her final surgery - the Fontan procedure - took place in December 2017. She initially made a good recovery but sadly passed away suddenly on 14th April 2018 at the age of 6. This is the story of a little girl whose half a heart overflowed with love. She was, and will forever be, our little miracle and brought joy to all who knew her.

Monday 9 December 2013

A day at Downing Street


We have all had a wonderful day today attending a children’s party at 10 Downing Street.  Jessica was invited to the party through the Alexander Devine Children’s Hospice charity (our wonderful community nurse is an Alexander nurse).   Naturally Mummy and Daddy were a lot more excited about going to Downing Street than either Jessica or Sophie but Jessica certainly enjoyed herself very much at the party.  She got to meet Dick and Dom, had her photo taken by a photographer from Woman magazine, met some of the remaining dancers from Strictly Come Dancing and the Prime Minister and then got to see Father Christmas and get a little present from him.  She had great fun wandering around with bunches of balloons and the hat off one of the polystyrene snowmen which were decorating one of the rooms.  It has been an amazing experience for us all and Jessica was quite tired out by the end and was asleep in her buggy before we got back to Westminster tube station. 





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