Two years into the journey

Today is the second anniversary of the day we found out about Jessica’s heart. What a huge blessing it is to be here today looking at our beautiful little girl who has now grown into a very active toddler and brings so much joy into our lives with her big smiles, hugs and kisses. God has been so very good to us over these past two years.

 In the two years since we were first diagnosed, Jessica has:

• had five operations (including the one at 28 weeks’ gestation), three cardiac catheter procedures and one other trip to theatre due to an infected wound after her Glenn procedure.
• been admitted to hospital ten times, spending 103 days in total in hospital, 38 of which were spent on PICU.
• had 25 hospital out-patient appointments across four different hospitals as well as being visited at home by the community nurse 57 times.
• attended six weddings, one civil partnership, four funerals and one christening (her own!)
• given us more smiles, kisses, hugs and brought more joy to our lives than could ever be measured

We have had, and continue to have, so much support on this journey from our friends and family not to mention many people who have prayed for Jessica who do not know us personally and we are so grateful to you all for your love and support – thank you so much.

We are hosting a coffee morning tomorrow morning (4th May) at Christ Church in Uxbridge, 10am – 12noon in order to fundraise for Little Hearts Matter. As many of you will already know from previous blog posts, Little Hearts Matter is a charity which provides support and information to children diagnosed with single ventricle heart conditions and their families. The information they provided as part of their antenatal pack was particularly helpful to us in the early days of Jessica’s diagnosis. If you are in the Uxbridge area tomorrow morning and able to pop in for a cup of tea and coffee, it would be lovely to see you.