Our beautiful daughter Jessica was born in September 2011 with a severe heart defect called hypoplastic left heart syndrome. This was diagnosed at her 20 week scan and we were initially told that she was unlikely to be suitable for surgery. However, a pioneering in-utero operation at 28 weeks to enlarge a hole in her atrial septum was carried out and she was able to make it to term and get through her first open-heart surgery at just eight hours old. Jessica underwent five more surgeries during her life. Her final surgery - the Fontan procedure - took place in December 2017. She initially made a good recovery but sadly passed away suddenly on 14th April 2018 at the age of 6. This is the story of a little girl whose half a heart overflowed with love. She was, and will forever be, our little miracle and brought joy to all who knew her.

Wednesday 2 January 2013

Home for the first time this year!



Jessica had a much better night and her oxygen saturation levels remained stable without the need for oxygen.  By morning, she was much more like her usual self, energetic and chirpy and wanting to get out of the cot and explore so once we got free of all the wires, she had a lovely time discovering all the toys and books in the hospital playroom!  The doctors were happy that her chest sounds were clear and so we were discharged home at lunchtime.  Jessica will finish the course of oral antibiotics over the next few days and will gradually be weaned off the salbutamol inhaler during this time.  Hopefully we won’t need to return to hospital other than for a check-up in the near future!  Thank you to everyone for your thoughts and prayers.


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