Our beautiful daughter Jessica was born in September 2011 with a severe heart defect called hypoplastic left heart syndrome. This was diagnosed at her 20 week scan and we were initially told that she was unlikely to be suitable for surgery. However, a pioneering in-utero operation at 28 weeks to enlarge a hole in her atrial septum was carried out and she was able to make it to term and get through her first open-heart surgery at just eight hours old. Jessica underwent five more surgeries during her life. Her final surgery - the Fontan procedure - took place in December 2017. She initially made a good recovery but sadly passed away suddenly on 14th April 2018 at the age of 6. This is the story of a little girl whose half a heart overflowed with love. She was, and will forever be, our little miracle and brought joy to all who knew her.

Wednesday, 24 October 2012

Crawling, signing and socialising



 Over the last couple of weeks, Jessica has become increasingly mobile and is now quite adept at crawling commando-style across the floor – she particularly likes to get herself underneath our coffee table and computer chair which is fine until she sits up and bumps her head!  She isn’t quite yet pulling herself up on the furniture and trying to stand, but she can hold her weight on her legs briefly when held in a standing position and can also balance whilst sitting on her rocking horse, which she loves.



She has also been adding more words to her signing vocabulary – for a long time, milk was the only word that she signed, but now she will sign ‘daddy’, ‘more’ and ‘all gone’.  She also says ‘goo-ger’ which we think is Jessica-speak for ‘good girl’ given the amount of times we use this phrase each day!



Jessica’s sats continue to be in the high-80s and the community nurse has dropped the frequency of her visits from fortnightly to monthly as Jessica is doing so well – this time last year, the community nurse was visiting twice a week – what a difference a year makes!  Jessica continues to gain weight beautifully – she now weighs in at 8225g (18lb 2oz) and has moved up to the 9th centile for weight.   She had her flu jab yesterday and was very brave – just a few tears when the injection was given and all smiles again within a couple of minutes.


Our little social butterfly continues to get out and about and enjoy being with people.  Over the last couple of weeks we have been away on the church family weekend, had another mini road-trip finding a few more Olympic gold postboxes (now up to 36 in total – 23 more to go!), helped Grandad celebrate his birthday by going out for a meal and had a visit from cousin Meryl. 



 It is such a joy to see how well Jessica is getting on and watch her discovering more and more each day.  We are due to have another check-up in Oxford on 16 November – hopefully all will continue to be well.


1 comment:

  1. lovely to watch Jessica playing "throw-the-dummy and-then-catch-up-with-it". :-)
    Elizabeth

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