Our beautiful daughter Jessica was born in September 2011 with a severe heart defect called hypoplastic left heart syndrome. This was diagnosed at her 20 week scan and we were initially told that she was unlikely to be suitable for surgery. However, a pioneering in-utero operation at 28 weeks to enlarge a hole in her atrial septum was carried out and she was able to make it to term and get through her first open-heart surgery at just eight hours old. Jessica underwent five more surgeries during her life. Her final surgery - the Fontan procedure - took place in December 2017. She initially made a good recovery but sadly passed away suddenly on 14th April 2018 at the age of 6. This is the story of a little girl whose half a heart overflowed with love. She was, and will forever be, our little miracle and brought joy to all who knew her.

Thursday, 3 May 2012

Continuing to make good progress


After Jessica pulled her feeding tube out on Tuesday, we tried seeing if she would be more willing to take the bottle but by the middle of the night with a hungry and unsettled Jessica still not wanting to drink more than 30ml of her bottle, the tube went back in again.  Jessica wasn’t particularly happy about having the tube put back in but once her tummy was full again, she was lovely and settled and everyone got some sleep!


The oramorph continues to be reduced and whilst Jessica has the occasional moment of being quite unsettled just before it is due, she is coping well with being weaned off it and hopefully this will be stopped on Sunday with a view to hopefully going home early next week if all is well.


We have had a few more visitors over the last couple of days – our friend Hannah and her little girl Abigail met Jessica for the first time yesterday and Nanny, Auntie Twinny and Auntie Maxine have visited today.



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