Our beautiful daughter Jessica was born in September 2011 with a severe heart defect called hypoplastic left heart syndrome. This was diagnosed at her 20 week scan and we were initially told that she was unlikely to be suitable for surgery. However, a pioneering in-utero operation at 28 weeks to enlarge a hole in her atrial septum was carried out and she was able to make it to term and get through her first open-heart surgery at just eight hours old. Jessica underwent five more surgeries during her life. Her final surgery - the Fontan procedure - took place in December 2017. She initially made a good recovery but sadly passed away suddenly on 14th April 2018 at the age of 6. This is the story of a little girl whose half a heart overflowed with love. She was, and will forever be, our little miracle and brought joy to all who knew her.

Wednesday 14 September 2011

Another little miracle

We will be posting a full update of today later on, but just wanted to post a quick update to let you all know that Jessica has had her second post-birth operation and has come through it. Our little miracle is showing once again that she is a fighter. She is currently still in theatre but we have been told she is fine and we are just waiting for her to come back to PICU.

Thank you to everyone for all your thoughts and prayers today - we have been truly blessed once again.

2 comments:

  1. Congratulations on the birth of your beautiful daughter! I'm so happy to hear that her surgeries have gone well. I'll keep her and your family in my prayers.

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  2. This has all been totally amazing to watch you through your journey...jessica is utterly beautiful you must both be so proud xxxx

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